Isaac turns 2
Local child battling, overcoming rare syndrome
What a difference a year makes.
As Isaac Corbett celebrated his second birthday Oct. 4, his parents marveled at how far he has come since he was diagnosed with Hurler Syndrome last fall.
"One year ago, after receiving the diagnosis, we had very little hope for our child," said Isaac's father, Gabe. "One year ago, he was going backwards, and probably faster than we thought."
A rare genetic disorder, Hurler Syndrome generally takes the lives of its victims at only five to six years of age without treatment. But Isaac was diagnosed at a young enough age for doctors at Duke University Medical Center to perform a bone marrow transplant.
After living seven months in Durham, N.C., while Isaac underwent chemotherapy, multiple surgeries, and the transplant, the Corbett family has returned to the Richmond area. "We still head down to Duke about once a month for an infusion," said Isaac's mother, Natalie, "and visit the clinic at MCV every two weeks for a blood draw and exam. . . We no longer have to give him daily infusions, only oral suspension medications."
"We have one resilient child," remarked Gabe.
Not only is Isaac progressing well with his weekly physical and speech therapy, but he is crawling, pulling up to a stand, and learning to climb stairs.
"We also enjoy witnessing his problem-solving skills in action and relish the fact that his mind is functioning well," said Natalie. "When asked what sound a cow, sheep, horse, and dog make, Isaac can respond appropriately.
"However, I am still waiting anxiously to hear him say 'Mama,' rather than continue to be associated with a cow – as Isaac says 'moo' instead."
Although Isaac's parents must take special care to guard against head injuries as Isaac learns to walk, their freedoms are expanding. They can invite a few healthy people into the home at a time, and even bring Isaac inside some other homes.
"We can now go to outdoor restaurants, be in the sunlight 10 minutes a day, and have him try people food again," said Gabe. "What most parents experience in one year of development, we’ve stretched over two and counting."
The Corbetts said they could not have come this far without the support of many friends and family members, including Gabe's mother, who helps with Isaac several days a week, and Natalie's mother, who lives in the Midwest but visited for several months. Other relatives and friends have helped look after Isaac, supplied food, assisted with household tasks, and volunteered in the community to raise funds for Isaac’s care.
For his recent birthday party, about a dozen family members filled the house to watch Isaac eat some cake.
"We had a blast," said Gabe of the occasion. "But he's very picky, [and we] ended up having to put his prized yogurt melts in and on top of the cake for him to even try it."
Following the birthday party, the family packed the car and headed to Duke so Isaac could get his scheduled infusion the next morning. "I guess it's just our life right now," said Gabe.
"There is a lot to keep track of with this busy little guy," Natalie said, noting that Isaac still faces surgeries to correct skeletal abnormalities in addition to the constant monitoring and medications.
"But he amazes us daily with his progress and determination."
To view a video of photos of Isaac's first two years, visit http://www.youtube.com/watch?v=33FKORU0Wa8 To re.ad the original story about Isaac ("New Life for Joy Boy," in the March 15 issue of the Citizen), visit http://www.henricocitizen.com/index.php/news/article/05477
The Richmond West Breakfast Lions Club (based in western Henrico) recently donated 59 backpacks to the Westover Hills Elementary School on Jahnke Road.
Above, club members display some of the backpacks prior to their distribution. > Read more.
Thanks to a first-place win in The American Protege International Vocal Competition 2014, Glen Allen High School student Matija Tomas will travel to New York City to perform at Carnegie Hall in December.
At the first-place winners recital in Weill Hall, Matija will perform Giacomo Puccini’s opera aria, “Chi il bel sogna di doretta.” She will perform with other vocalists from around the world and have the opportunity to win other awards and scholarships.
Locally, Thomas has performed with Richmond’s renowned Glorious Christmas Nights, Christian Youth Theatre, and WEAG’s Urban Gospel Youth Choir. > Read more.
The John Rolfe YMCA and Gayton Baptist Church have partnered in an effort to bring greater health and wellness opportunities to the community.
Through this partnership, the John Rolfe Y will run Youth Winter Sports programs, including basketball and indoor soccer, in Gayton’s newly renovated $5.5 million outreach center that features a new gymnasium, youth and teen space, social space with café, meeting space and full service commercial kitchen. > Read more.
The Community College Workforce Alliance (CCWA), in partnership with the Virginia Film Office, will offer "Get Your Start in the Film Industry," a two-day seminar designed to prepare workers for film, television and commercial projects in Virginia. The course will be held Oct. 4-5 at the Workforce Development and Conference Center, 1651 Parham Road in Henrico, on the campus of J. Sargeant Reynolds Community College.
The training will be taught by Gary Romolo Fiorelli, an accomplished assistant director for film and television projects, which include the television series Sons of Anarchy and ABC’s current drama Mistresses. > Read more.
The Boathouse restaurant will open at Short Pump Town Center in the spring, its third location in the region.
“People have asked us to come to the West End for years,” said owner Kevin Healy. “When the opportunity arose, we knew had to jump on it.”
The new restaurant will be located in a 5,800-square-foot space under the Hyatt House Hotel at the town center and will include a large outdoor patio. > Read more.
Boka Kantina exceeds its strong food truck reputation
Already a fan of Boka fare from outdoor events with the Tako Truck, I was delighted to learn of the new restaurant, and eager to see if its reputation held up after putting down brick-and-mortar roots.
Would the food lose its zest if I wasn’t enjoying it in the great outdoors? Would it seem pedestrian served from an ordinary kitchen instead of a truck?
Would the tacos be less satisfying as an antidote to normal lunch hunger – instead of being ingested to stave off desperate hunger after a long afternoon of crowds, sun, and tedious lines? > Read more.
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