Henrico County VA

Isaac turns 2

Local child battling, overcoming rare syndrome
What a difference a year makes.

As Isaac Corbett celebrated his second birthday Oct. 4, his parents marveled at how far he has come since he was diagnosed with Hurler Syndrome last fall.

"One year ago, after receiving the diagnosis, we had very little hope for our child," said Isaac's father, Gabe. "One year ago, he was going backwards, and probably faster than we thought."

A rare genetic disorder, Hurler Syndrome generally takes the lives of its victims at only five to six years of age without treatment. But Isaac was diagnosed at a young enough age for doctors at Duke University Medical Center to perform a bone marrow transplant.

After living seven months in Durham, N.C., while Isaac underwent chemotherapy, multiple surgeries, and the transplant, the Corbett family has returned to the Richmond area. "We still head down to Duke about once a month for an infusion," said Isaac's mother, Natalie, "and visit the clinic at MCV every two weeks for a blood draw and exam. . . We no longer have to give him daily infusions, only oral suspension medications."

"We have one resilient child," remarked Gabe.

Not only is Isaac progressing well with his weekly physical and speech therapy, but he is crawling, pulling up to a stand, and learning to climb stairs.

"We also enjoy witnessing his problem-solving skills in action and relish the fact that his mind is functioning well," said Natalie. "When asked what sound a cow, sheep, horse, and dog make, Isaac can respond appropriately.

"However, I am still waiting anxiously to hear him say 'Mama,' rather than continue to be associated with a cow – as Isaac says 'moo' instead."

Although Isaac's parents must take special care to guard against head injuries as Isaac learns to walk, their freedoms are expanding. They can invite a few healthy people into the home at a time, and even bring Isaac inside some other homes.

"We can now go to outdoor restaurants, be in the sunlight 10 minutes a day, and have him try people food again," said Gabe. "What most parents experience in one year of development, we’ve stretched over two and counting."

The Corbetts said they could not have come this far without the support of many friends and family members, including Gabe's mother, who helps with Isaac several days a week, and Natalie's mother, who lives in the Midwest but visited for several months. Other relatives and friends have helped look after Isaac, supplied food, assisted with household tasks, and volunteered in the community to raise funds for Isaac’s care.

For his recent birthday party, about a dozen family members filled the house to watch Isaac eat some cake.

"We had a blast," said Gabe of the occasion. "But he's very picky, [and we] ended up having to put his prized yogurt melts in and on top of the cake for him to even try it."

Following the birthday party, the family packed the car and headed to Duke so Isaac could get his scheduled infusion the next morning. "I guess it's just our life right now," said Gabe.

"There is a lot to keep track of with this busy little guy," Natalie said, noting that Isaac still faces surgeries to correct skeletal abnormalities in addition to the constant monitoring and medications.

"But he amazes us daily with his progress and determination."

To view a video of photos of Isaac's first two years, visit http://www.youtube.com/watch?v=33FKORU0Wa8 To re.ad the original story about Isaac ("New Life for Joy Boy," in the March 15 issue of the Citizen), visit http://www.henricocitizen.com/index.php/news/article/05477
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Community

10th annual Filipino Festival coming in August


The 10th Annual Filipino Festival will be held Aug. 7-8 at Our Lady of Lourdes Church, 8200 Woodman Rd., beginning with opening ceremonies at 5 p.m. Friday and continuing with live entertainment, food and exhibits until 10 p.m. On Saturday the festival will take place from 10 a.m. to 10 p.m. with a full schedule of performances featuring traditional Filipino dance, music and song.

Filipino cuisine, including BBQ, pansit, lumpia, adobo, halo-halo, lechon, empanada and leche flan, will be available for purchase. The festival will also feature a children's area, church tours, exhibits, and health screenings. > Read more.

CMoR reopens at new Short Pump site

The Children’s Museum of Richmond last week opened its new Short Pump location at Short Pump Town Center, to the delight of children who attended a sneak preview of the location July 10. The new facility, located under the forthcoming LL Bean store (formerly the food court) is 8,500 square feet in size – much larger than CMoR’s former Short Pump location at West Broad Village, which opened in 2010. The new space includes The CarMax Foundation Service Station, the Silver Diner, a grocery store, a performance stage and an art studio, as well as a giant Light Bright Wall. > Read more.
Entertainment

Weekend Top 10


The Virginia Hispanic Chamber of Commerce and Henrico Police are both presenting community events tomorrow, Aug. 1. The Feria Community Resource Fair at Richmond International Raceway brings together community service providers, embassies/consulates from Latin American countries, government agencies, nonprofit organizations and corporations that impact the Latino community. The Division of Police’s Community Day will feature demonstrations and displays from police, fire, animal protection and sheriff’s office, as well as family activities, food, entertainment and more. Other events this weekend include wine, chess and theatre! For all our top picks this weekend, click here! > Read more.






 

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Henricus Historical Park will present James River Camp for ages 9-12 from 9 a.m. to 4 p.m. Aug. 11-13. Children will have the opportunity to paddle a kayak and identify… Full text

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