Henrico County VA

Isaac turns 2

Local child battling, overcoming rare syndrome
What a difference a year makes.

As Isaac Corbett celebrated his second birthday Oct. 4, his parents marveled at how far he has come since he was diagnosed with Hurler Syndrome last fall.

"One year ago, after receiving the diagnosis, we had very little hope for our child," said Isaac's father, Gabe. "One year ago, he was going backwards, and probably faster than we thought."

A rare genetic disorder, Hurler Syndrome generally takes the lives of its victims at only five to six years of age without treatment. But Isaac was diagnosed at a young enough age for doctors at Duke University Medical Center to perform a bone marrow transplant.

After living seven months in Durham, N.C., while Isaac underwent chemotherapy, multiple surgeries, and the transplant, the Corbett family has returned to the Richmond area. "We still head down to Duke about once a month for an infusion," said Isaac's mother, Natalie, "and visit the clinic at MCV every two weeks for a blood draw and exam. . . We no longer have to give him daily infusions, only oral suspension medications."

"We have one resilient child," remarked Gabe.

Not only is Isaac progressing well with his weekly physical and speech therapy, but he is crawling, pulling up to a stand, and learning to climb stairs.

"We also enjoy witnessing his problem-solving skills in action and relish the fact that his mind is functioning well," said Natalie. "When asked what sound a cow, sheep, horse, and dog make, Isaac can respond appropriately.

"However, I am still waiting anxiously to hear him say 'Mama,' rather than continue to be associated with a cow – as Isaac says 'moo' instead."

Although Isaac's parents must take special care to guard against head injuries as Isaac learns to walk, their freedoms are expanding. They can invite a few healthy people into the home at a time, and even bring Isaac inside some other homes.

"We can now go to outdoor restaurants, be in the sunlight 10 minutes a day, and have him try people food again," said Gabe. "What most parents experience in one year of development, we’ve stretched over two and counting."

The Corbetts said they could not have come this far without the support of many friends and family members, including Gabe's mother, who helps with Isaac several days a week, and Natalie's mother, who lives in the Midwest but visited for several months. Other relatives and friends have helped look after Isaac, supplied food, assisted with household tasks, and volunteered in the community to raise funds for Isaac’s care.

For his recent birthday party, about a dozen family members filled the house to watch Isaac eat some cake.

"We had a blast," said Gabe of the occasion. "But he's very picky, [and we] ended up having to put his prized yogurt melts in and on top of the cake for him to even try it."

Following the birthday party, the family packed the car and headed to Duke so Isaac could get his scheduled infusion the next morning. "I guess it's just our life right now," said Gabe.

"There is a lot to keep track of with this busy little guy," Natalie said, noting that Isaac still faces surgeries to correct skeletal abnormalities in addition to the constant monitoring and medications.

"But he amazes us daily with his progress and determination."

To view a video of photos of Isaac's first two years, visit http://www.youtube.com/watch?v=33FKORU0Wa8 To re.ad the original story about Isaac ("New Life for Joy Boy," in the March 15 issue of the Citizen), visit http://www.henricocitizen.com/index.php/news/article/05477
Bail Bondsman Henrico VA Richmond VA
Community

RAMPS receives $8k grant


RAMPS (Ramp Access Made Possible by Students) recently received an $8,000 grant from the Christopher and Dana Reeve Foundation. The award was one of 75 grants totaling more than $600,137 awarded by the Reeve Foundation to nonprofit organizations nationwide that provide more opportunities, access, and daily quality of life for individuals living with paralysis, their families and caregivers.

RAMPS, an organization founded by then-Henrico County high school students to build ramps for local low-income residents who need them, will use the grant to purchase modular wheelchair ramp supplies. These supplies will be used by local high school RAMPS clubs, who provide volunteers to build the ramps. > Read more.

Henrico man to compete in Liberty Mutual Invitational National Finals

Henrico resident Larry Loving, Jr., will compete with three other locals – Thomas Scribner (Richmond), Roscoe McGhee (Midlothian) and Larry Loving (Richmond) in the Liberty Mutual Insurance Invitational National Finals at TPC Sawgrass, in Ponte Vedra Beach, Fla., Feb. 26-Mar. 1. The foursome qualified for the national golf tournament by winning the Liberty Mutual Insurance Invitational, held at Whiskey Creek Golf Club in Ijamsville, Md. on June 11. That event supported the RiteCare Center for Childhood Language Disorders.

In total, 240 amateur golfers will compete in Florida. > Read more.

Henrico PAL recognizes supporters, HSHS athlete


The Henrico Police Athletic League (PAL) held its Sixth Annual Awards Banquet Feb. 5 at The Cultural Arts Center of Glen Allen, celebrating accomplishments of 2014 and recognizing outstanding contributions to the organization. Henrico County Juvenile Domestic Court Judge Denis Soden served as master of ceremonies and former Harlem Globetrotter Melvin Adams served as keynote speaker. 

Among the 2014 honorees were Richmond International Raceway (Significant Supporter), Richmond Strikers Soccer Club (Significant Supporter), Henrico County Schools-Pupil Transportation (Summer Camp Supporter), Bruce Richardson, Jr. (Youth of the Year), Sandra Williams (Volunteer of the Year), Thomas Williams (Employee of the Year), Mikki Pleasants (Board Member of the Year), and Michelle Sheehan (Police Officer of the Year).   > Read more.

Page 1 of 123 pages  1 2 3 >  Last ›

Entertainment

Weekend Top 10


For our Top 10 calendar events this weekend, click here! > Read more.

Travinia brings contemporary elegance to Willow Lawn


It was another win for Willow Lawn when Travinia Italian Kitchen and Wine Bar opened there six months ago, nestled in the heart of the re-made shopping center. The contemporary American Italian restaurant boasts 13 locations up and down the East Coast, with the Henrico location opening in August.

In the same week, I hit up Travinia twice, once for lunch and once for a late dinner. At lunchtime on a weekday, I was overwhelmed by the smell of garlic and by the number of working professionals in nice suits on their lunch breaks. When we first walked in, I was concerned our meal would be a little too pricey based on the décor – it’s a really nice place. Luckily, the menu has a variety of options for every budget. > Read more.

Soak up the fun

‘SpongeBob’ movie energizes with wit, laughter

There’s a ton of sugar in The SpongeBob Movie: Sponge Out of Water. Literal sugar, as SpongeBob Squarepants (Tom Kenny) and Patrick (Bill Fagerbakke) inhale their own weight in cotton candy and eat ice cream, one scoop per mouthful.

At one point we burrow into the brain of our boxy yellow hero and discover the inner workings of his brain: googly-eyed cakes and candies that giggle and sing. All of which is extremely appropriate for a film like Sponge Out of Water. Because not only is the movie sweet (the “awwww” kind of sweet), but it’s the equivalent of a 30-candy bar sugar rush, zipping between ideas like a sponge on rocket skates.

The story under all this is really not that complicated. SpongeBob flips burgers at the Krusty Krab. > Read more.

Page 1 of 118 pages  1 2 3 >  Last ›







 

Reader Survey | Advertising | Email updates

Classifieds

SAVE on Cable TV-Internet-Digital Phone. Packages start at $89.99/mo (for 12 months.) Options from ALL major service providers. Call Acceller today to learn more! CALL 1-888-686-5081.
Full text

Place an Ad | More Classifieds

Calendar

The Richmond Brain Aneurysm/Arteriovenous Malformation (AVM) Support Group, sponsored by the Joe Niekro Foundation, meets on the second Tuesday of every month from 7 p.m. to 8:30 p.m. at St.… Full text

Your weather just got better.

Henricopedia

Henrico's Top Teachers