ASK and receive
Families in crisis turn to childhood cancer support group
Jonathan Pilch had never had a sick day in his life.
So in January 2008, when he began to act grumpy and out-of-sorts, his mother – who had observed similar behavior in her two older sons – assumed the two-year-old was getting his molars.
When several days went by and Jonathan was still too listless to play, Pam Pilch suspected something more serious was wrong. But nothing could have prepared her for the response when she took Jonathan to the doctor.
"The pediatrician took one look at him," Pam recalls, "and said, 'He is very, very sick. I'm going to call the rescue squad.’”
The next day, she and her husband were told that Jonathan had acute lymphoblastic leukemia (ALL).
"I can't tell you what a shock it is to learn your child has cancer," Pilch says today. "It was really scary. . . We had no idea what to do."
Fortunately, there were parents from ASK who did.
At Every Turn
A Richmond nonprofit that provides support for children with cancer and their families, ASK was founded in 1975 by a small group of parents of pediatric cancer patients at Medical College of Virginia.
From its modest beginnings arranging small parent gatherings and providing resources such as books, toys and games for children in treatment, ASK has grown today into an organization that steps in at diagnosis and guides families through the full range of non-clinical treatment.
"They've personally been there at every turn," says Pilch. "They just shepherd us through everything. The social worker helped us handle the insurance. They file for financial aid when you can't figure out the paperwork. They bring gift bags to the hospital. They remember the kids' birthdays; they remember the siblings. They throw a huge Christmas party.
"People from ASK knew what I needed before I needed it."
On the Front Line
In the years since 1975, when childhood cancer was virtually a death sentence and much of ASK's focus was on bereavement support, survival rates have improved dramatically. Now the organization's focus, happily, has shifted to helping families with the challenges of long-term survival.
Among those challenges are dealing with the effects of toxic chemicals used in treatment, which can lead to cognitive impairment for survivors.
"ASK does a lot with helping children in school," says Pilch, adding that emergency support is another vital mission. Parents in financial difficulty who have an overdue bill or are being kicked out of their apartment have access to an email list of contacts ready to locate temporary assistance.
"They're on the front line," says Pilch, "with financial, emotional, academic and social support."
So when ASK holds its annual fundraiser April 30 – a family fun walk and 5k at Short Pump Town Center -- the Pilch family not only plans to be in attendance, but to show up with as many friends and Wellesley neighbors as they can possibly recruit.
And Pam Pilch is happy to report that five-year-old Jonathan – who received his last dose of chemotherapy on March 27 – will blend right into the crowd.
"If you saw my three kids," says Pilch, "you would not be able to guess which one has been sick."
For the Price family of Henrico, ASK has been a lifeline as well – offering not only financial and emotional support, but a chance for 14-year-old Nile to rebuild his strength and self-esteem.
Diagnosed with sickle cell anemia at birth, Nile spent months in the hospital at the age of 12, enduring chemotherapy and suffering severe pain before obtaining the bone marrow transplant he needed to survive.
In the year before the transplant, he had become too weak to go to school – even too weak to play. In his first post-transplant attempt at exercising, he could barely manage ten minutes of walking on a treadmill. But since then, the freshman at Douglas Freeman High School has come a long way – thanks to a program called Moving Forward.
A partnership between ASK and the YMCA of Greater Richmond, Moving Forward provides participants with a Y family membership, a free personal trainer, and cooking classes and a dietician throughout the year.
The weekly workouts at John Rolfe YMCA – which often include his brothers and mother Deborah as well –have not only helped Nile to regain his strength, but also to build his confidence. On March 3, in fact, Nile spoke at the first Moving Forward graduation program.
In addition, the group workouts have brought the family closer together – and resulted in a 20-pound weight loss for Deborah.
'I'm Not Alone'
Two months ago, the Price family traveled to Houston to meet the woman who donated the marrow that saved Nile's life.
"She's 47 and a mother of two," says Deborah Price. "One son was born with CHARGE Syndrome and is blind and deaf, so she understands the in-and-out-of-the-hospital [lifestyle].
"Our families just jelled," adds Price. "She's now 'Auntie Laura.' She says, 'Now I have three sons!'"
Although Nile was attending half days at Freeman for awhile, he recently suffered a setback due to lung damage from the sickle cell, and is again doing lessons with a homebound teacher.
Being at home would be a lot harder, says his mother, if not for the friendships Nile has forged through ASK. "It's helped him meet more kids," she says. "[He can say] 'I'm definitely not alone; there are other teenagers I can connect with.' That has meant a lot to him."
Recalling that she first turned to ASK for financial aid ("after Nile came home from the hospital with a bag of meds [costing] five- or six-hundred dollars"), Deborah Price notes that the group offers much more than monetary support, and that she looks forward to enrolling in a support group for caregivers.
"The thing I like most [about ASK] is that they are there for the child," says Price.
"But they help everyone in the family."
The ASK Family Fun Walk and 5K will be held April 30 at the Short Pump Town Center. For details, visit http://askwalk.org .
Citizen Staff Reports 03/03/2015
RAMPS (Ramp Access Made Possible by Students) recently received an $8,000 grant from the Christopher and Dana Reeve Foundation. The award was one of 75 grants totaling more than $600,137 awarded by the Reeve Foundation to nonprofit organizations nationwide that provide more opportunities, access, and daily quality of life for individuals living with paralysis, their families and caregivers.
RAMPS, an organization founded by then-Henrico County high school students to build ramps for local low-income residents who need them, will use the grant to purchase modular wheelchair ramp supplies. These supplies will be used by local high school RAMPS clubs, who provide volunteers to build the ramps. > Read more.
Citizen Staff Reports 02/19/2015
Henrico resident Larry Loving, Jr., will compete with three other locals – Thomas Scribner (Richmond), Roscoe McGhee (Midlothian) and Larry Loving (Richmond) in the Liberty Mutual Insurance Invitational National Finals at TPC Sawgrass, in Ponte Vedra Beach, Fla., Feb. 26-Mar. 1. The foursome qualified for the national golf tournament by winning the Liberty Mutual Insurance Invitational, held at Whiskey Creek Golf Club in Ijamsville, Md. on June 11. That event supported the RiteCare Center for Childhood Language Disorders.
In total, 240 amateur golfers will compete in Florida. > Read more.
In total, 240 amateur golfers will compete in Florida. > Read more.
The Henrico Police Athletic League (PAL) held its Sixth Annual Awards Banquet Feb. 5 at The Cultural Arts Center of Glen Allen, celebrating accomplishments of 2014 and recognizing outstanding contributions to the organization. Henrico County Juvenile Domestic Court Judge Denis Soden served as master of ceremonies and former Harlem Globetrotter Melvin Adams served as keynote speaker.
Among the 2014 honorees were Richmond International Raceway (Significant Supporter), Richmond Strikers Soccer Club (Significant Supporter), Henrico County Schools-Pupil Transportation (Summer Camp Supporter), Bruce Richardson, Jr. (Youth of the Year), Sandra Williams (Volunteer of the Year), Thomas Williams (Employee of the Year), Mikki Pleasants (Board Member of the Year), and Michelle Sheehan (Police Officer of the Year). > Read more.
For our Top 10 calendar events this weekend, click here! > Read more.
It was another win for Willow Lawn when Travinia Italian Kitchen and Wine Bar opened there six months ago, nestled in the heart of the re-made shopping center. The contemporary American Italian restaurant boasts 13 locations up and down the East Coast, with the Henrico location opening in August.
In the same week, I hit up Travinia twice, once for lunch and once for a late dinner. At lunchtime on a weekday, I was overwhelmed by the smell of garlic and by the number of working professionals in nice suits on their lunch breaks. When we first walked in, I was concerned our meal would be a little too pricey based on the décor – it’s a really nice place. Luckily, the menu has a variety of options for every budget. > Read more.
‘SpongeBob’ movie energizes with wit, laughter
There’s a ton of sugar in The SpongeBob Movie: Sponge Out of Water. Literal sugar, as SpongeBob Squarepants (Tom Kenny) and Patrick (Bill Fagerbakke) inhale their own weight in cotton candy and eat ice cream, one scoop per mouthful.
At one point we burrow into the brain of our boxy yellow hero and discover the inner workings of his brain: googly-eyed cakes and candies that giggle and sing. All of which is extremely appropriate for a film like Sponge Out of Water. Because not only is the movie sweet (the “awwww” kind of sweet), but it’s the equivalent of a 30-candy bar sugar rush, zipping between ideas like a sponge on rocket skates.
The story under all this is really not that complicated. SpongeBob flips burgers at the Krusty Krab. > Read more.
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