This month’s Virginia Dare MS 150 bike tour wound through some of Virginia’s most scenic and historic countryside: along the banks of the James River, past stately colonial plantations, down to Williamsburg and back to Richmond.
A.C. Roane may not have been able to see it — but he could appreciate it just the same.
Roane’s view of the surroundings on his two-day charity ride was limited primarily to the blurry shapes and swatches of color that indicated the location of his cycling friends — a group known as the “Chain Gang” — on the road ahead of him.
For almost three decades, beginning shortly after Roane’s graduation from Virginia Tech, the hereditary disease retinitis pigmentosa (RP) has been stealing his sight. Today he is 50 and long ago quit driving a car. He views the world through a tunnel of fog that will only shrink as the disease progresses.
As if RP wasn’t enough to cope with, Roane also suffered a stroke in 1997 — at the age of 43.
“It was just a fluke thing,” he says. “Other than the RP, I was always healthy as a horse. I had low blood pressure, and no clue anything was wrong.”
The day of the stroke, Roane was upstairs in his bedroom preparing to take his daughter to a piano lesson, when the room started spinning violently. He was able to call to his daughter for help, and at the hospital learned that he had an extreme narrowing of the arteries at the back of his head.
Fortunately, the stoke damage was in a relatively unimportant, “forgiving” part of the brain that controls equilibrium, and within a year he had fully recovered. But the experience left its mark.
“I’ve always felt that life was really fragile,” says Roane, “but when this happened it really drove it home.
“It was like someone flipped a switch and the whole world turned upside down.”
So what, you might ask, is Roane doing on a two-day bike ride — and raising money for multiple sclerosis?
On the one-year anniversary of his stroke, Roane says, he felt the need to celebrate his recovery and challenge himself at the same time. He signed up for the Virginia Dare MS bike ride without knowing a single other participant or knowing anyone with MS (his sister-in-law has since been diagnosed). He simply enjoyed riding bikes, and had never gone a long distance.
“I wanted to do something to signify I was totally back,” he said.
The ‘chain gang’ is born
Although he had trained and felt physically fit, Roane began that first tour in 1998 with no small amount of trepidation.
“It’s a big group doing the ride, but it gets spread out over 75 miles [a day’s leg],” he observes. Roane has particular difficulty seeing his way on back roads with no center lines or side lines, and in transitions from sunlight to shadow. “I was afraid I would miss one of the [marker] arrows,” he chuckles, “and ride off into the sunset!”
Coming out of the first rest stop, however, he heard the familiar voice of neighbor Gordon Fox.
“Riding with anyone?” asked Fox, who was accompanied by a friend – and with that was born the “Chain Gang.”
For seven years now, Roane has ridden with the group through everything from torrential downpours to terrific heat – not to mention an obstacle course of hazards from potholes and dogs to gravel, glass and railroad tracks. All such obstacles are relayed to him verbally, and he usually manages to average about 17 mph over the two-day ride.
The camaraderie of riding with a group, Roane observes, is wonderful; but equally important is the feeling of accomplishment the ride gives him.
“With what I have, you need to step and out and stretch yourself a bit,” he says. “I’ve found that when you challenge yourself to do things, it gives you confidence. If you don’t stretch yourself, your world starts to get smaller and smaller.”
Although Roane gave up working in the insurance business years ago, he continues to thrive in his role of stay-home dad to daughters Natalie, a new J.R.Tucker H.S. grad, and Anne Carey, a rising freshman at Deep Run H.S.
He goes snow skiing and water skiing and ran the Ukrop’s 10K with his daughter in March. In the familiar environment of his Wellesley home, he gardens and often does the cooking for the girls (who particularly favor his spaghetti) and his wife Brenda.
He can be so proficient at these tasks, in fact, that a newcomer to the scene would never guess he has limited sight. But in unfamiliar surroundings his limitations become “painfully obvious,” says Roane — who adds that anyone who stumbles or says “excuse me” to inanimate objects as often as he does can’t help but develop the ability to laugh at himself.
‘A screeching halt’
His only bike-riding mishap had nothing to do with his lack of vision, either. In that race, two blocks from the finish line, Roane’s bike shoes got hung up in the pedals and he broke his wrist in the resulting fall.
Another freak “off-bike” accident on the way to a tour left riders unscathed, but cost Roane and his group their cycles. As the carload of bikers approached Fredericksburg on I-95, the straps of the bike rack gave way and the entire contents crashed to the pavement in a tangle.
“We brought I-95 to a screeching halt,” laughs Roane. “Those bikes looked like pretzels!” Although it ruined the ride for that weekend, he says with a shrug, the insurance paid for a new bike that he loves: a titanium model weighing a mere 17 pounds.
With a disease as progressive as his, Roane cherishes each year that he can continue to ride in the Virginia Dare, and holds out hope that researchers will find a way to arrest RP.
He never hesitates to participate in studies of the disease, such as the program that required him to make multiple trips to Johns Hopkins University in Maryland. Who knows? Given the right breakthrough, he might someday be able to enjoy the sight he misses most – his daughters’ faces as they grow up.
Meanwhile, Roane and the “Chain Gang” raise hefty amounts of cash for multiple sclerosis research – though he insists his former employer and perennial sponsor, Northwestern Mutual (John Van Der Hyde Agency), deserves much of the credit for the $400 in pledges he collected this year.
Obviously, it would take a lot more than near-blindness to make Roane miss a Virginia Dare ride. “I have so many wonderful friends,” he exclaims, as he savors his memories of the latest tour. “People are always willing to help. And what a wonderful job the MS Society does — the ride is so well-organized.
“Besides,” he laughs, “They treat us like celebrities!”
For information on the Va. Dare tour, or donating to the MS Society, visit http://www.nationalmssociety.org/var/home
Event will help kick of Marine Corps' 'Toys for Tots' campaign
All 140 A.C. Moore locations will serve as drop-off centers this year for the Marine Toys for Tots Foundation, and all toys collected will stay in the local communities served by the stores in which they are donated.
On Saturday, Nov. 15, the Willow Lawn location will kick off the month-long program by hosting a "Make & Take" craft event for kids. Children ages six and older will be able to make a craft and take it home with them. Representatives from the Marines will be in-store to teach customers about the Toys for Tots program. A.C. Moore team members will be on site to help with the crafts. > Read more.
Citizen Staff Reports 11/12/2014
Commonwealth Catholic Charities is in desperate need of food donations for its community food pantry that serves the region’s low-income families, according to officials with the Henrico-based nonprofit.
After moving into its new location this past summer, the agency has dedicated a larger space for the pantry but the shelves are practically empty.
“As we head into the holidays and the weather turns colder, the need for food becomes even more critical, but unfortunately our cupboards are nearly bare,” said Jay Brown, the agency’s director for the division of housing services. “Donations of food will allow us help provide.” > Read more.
More than 1,000 volunteers from throughout the region gathered last month as part of HandsOn Greater Richmond to complete more than 60 projects.
The event is a program of the Partnership for Nonprofit Excellence.
In Henrico, a group of Target employees (pictured) undertook a project at Fairfield Middle School to help re-plant the school's community garden and paint the outdoor shelter. > Read more.
For our Top 10 calendar events this weekend, click here! > Read more.
Animated ‘Book of Life’ overcomes average storyline with extraordinary presentation, details
“Beauty is only skin deep” applies all too well to The Book of Life. An animated feature from first-time director Jorge R. Gutierrez, The Book of Life spins a classic love triangle – two childhood friends, Manolo (Diego Luna) and Joaquin (Channing Tatum) both in love with Maria (Zoe Saldana).
Maria, in all honesty, is a little more interested in Manolo’s musical charms, but her father wants her to marry the boastful and militaristic Joaquin. And when two gods, La Muerte and Xibalba (Kate de Castillo and Ron Perlman, respectively), turn this little love triangle into a wager (as gods often do), Manolo’s quest for true love will take him through life, death, immortality and the underworlds of Mexican folklore.
Now, back to the “beauty” part – because as far as the visuals go, The Book of Life is the most extraordinary animated film to hit theaters this year. > Read more.
The holiday season is underway and Lakeside Avenue has everything you need during its 10th annual Holly Jolly Christmas event! Shoppers will enjoy extended hours at several dozen shops and free trolley rides. Also this weekend, the 23rd annual Great American Indian Exposition & Pow-Wow. There will be over 200 American Indian dancers, singers, drummers, artists and crafters. In the mood for music? Check out The Gibson Brothers at UR and Susan Greenbaum at the Shady Grove Coffeehouse. For all our top picks this weekend, click here! > Read more.
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ClassifiedsATTENTION DIABETICS with Medicare. Get a FREE talking meter and diabetic testing supplies at NO COST, plus FREE home delivery! Best of all, this meter eliminates painful finger pricking! Call… Full text
CalendarThe Saint Gertrude Alumnae Association Board will present the “Holly Spree on Stuart Avenue” from 6:30 p.m. to 9 p.m. Nov. 21 and from 9 a.m. to 3 p.m. Nov.… Full text