By Patty Kruszewski, Citizen Managing Editor 06/17/04
This month’s Virginia Dare MS 150 bike tour wound through some of Virginia’s most scenic and historic countryside: along the banks of the James River, past stately colonial plantations, down to Williamsburg and back to Richmond.
A.C. Roane may not have been able to see it — but he could appreciate it just the same.
Roane’s view of the surroundings on his two-day charity ride was limited primarily to the blurry shapes and swatches of color that indicated the location of his cycling friends — a group known as the “Chain Gang” — on the road ahead of him.
For almost three decades, beginning shortly after Roane’s graduation from Virginia Tech, the hereditary disease retinitis pigmentosa (RP) has been stealing his sight. Today he is 50 and long ago quit driving a car. He views the world through a tunnel of fog that will only shrink as the disease progresses.
As if RP wasn’t enough to cope with, Roane also suffered a stroke in 1997 — at the age of 43.
“It was just a fluke thing,” he says. “Other than the RP, I was always healthy as a horse. I had low blood pressure, and no clue anything was wrong.”
The day of the stroke, Roane was upstairs in his bedroom preparing to take his daughter to a piano lesson, when the room started spinning violently. He was able to call to his daughter for help, and at the hospital learned that he had an extreme narrowing of the arteries at the back of his head.
Fortunately, the stoke damage was in a relatively unimportant, “forgiving” part of the brain that controls equilibrium, and within a year he had fully recovered. But the experience left its mark.
“I’ve always felt that life was really fragile,” says Roane, “but when this happened it really drove it home.
“It was like someone flipped a switch and the whole world turned upside down.”
So what, you might ask, is Roane doing on a two-day bike ride — and raising money for multiple sclerosis?
On the one-year anniversary of his stroke, Roane says, he felt the need to celebrate his recovery and challenge himself at the same time. He signed up for the Virginia Dare MS bike ride without knowing a single other participant or knowing anyone with MS (his sister-in-law has since been diagnosed). He simply enjoyed riding bikes, and had never gone a long distance.
“I wanted to do something to signify I was totally back,” he said.
The ‘chain gang’ is born
Although he had trained and felt physically fit, Roane began that first tour in 1998 with no small amount of trepidation.
“It’s a big group doing the ride, but it gets spread out over 75 miles [a day’s leg],” he observes. Roane has particular difficulty seeing his way on back roads with no center lines or side lines, and in transitions from sunlight to shadow. “I was afraid I would miss one of the [marker] arrows,” he chuckles, “and ride off into the sunset!”
Coming out of the first rest stop, however, he heard the familiar voice of neighbor Gordon Fox.
“Riding with anyone?” asked Fox, who was accompanied by a friend – and with that was born the “Chain Gang.”
For seven years now, Roane has ridden with the group through everything from torrential downpours to terrific heat – not to mention an obstacle course of hazards from potholes and dogs to gravel, glass and railroad tracks. All such obstacles are relayed to him verbally, and he usually manages to average about 17 mph over the two-day ride.
The camaraderie of riding with a group, Roane observes, is wonderful; but equally important is the feeling of accomplishment the ride gives him.
“With what I have, you need to step and out and stretch yourself a bit,” he says. “I’ve found that when you challenge yourself to do things, it gives you confidence. If you don’t stretch yourself, your world starts to get smaller and smaller.”
Although Roane gave up working in the insurance business years ago, he continues to thrive in his role of stay-home dad to daughters Natalie, a new J.R.Tucker H.S. grad, and Anne Carey, a rising freshman at Deep Run H.S.
He goes snow skiing and water skiing and ran the Ukrop’s 10K with his daughter in March. In the familiar environment of his Wellesley home, he gardens and often does the cooking for the girls (who particularly favor his spaghetti) and his wife Brenda.
He can be so proficient at these tasks, in fact, that a newcomer to the scene would never guess he has limited sight. But in unfamiliar surroundings his limitations become “painfully obvious,” says Roane — who adds that anyone who stumbles or says “excuse me” to inanimate objects as often as he does can’t help but develop the ability to laugh at himself.
‘A screeching halt’
His only bike-riding mishap had nothing to do with his lack of vision, either. In that race, two blocks from the finish line, Roane’s bike shoes got hung up in the pedals and he broke his wrist in the resulting fall.
Another freak “off-bike” accident on the way to a tour left riders unscathed, but cost Roane and his group their cycles. As the carload of bikers approached Fredericksburg on I-95, the straps of the bike rack gave way and the entire contents crashed to the pavement in a tangle.
“We brought I-95 to a screeching halt,” laughs Roane. “Those bikes looked like pretzels!” Although it ruined the ride for that weekend, he says with a shrug, the insurance paid for a new bike that he loves: a titanium model weighing a mere 17 pounds.
With a disease as progressive as his, Roane cherishes each year that he can continue to ride in the Virginia Dare, and holds out hope that researchers will find a way to arrest RP.
He never hesitates to participate in studies of the disease, such as the program that required him to make multiple trips to Johns Hopkins University in Maryland. Who knows? Given the right breakthrough, he might someday be able to enjoy the sight he misses most – his daughters’ faces as they grow up.
Meanwhile, Roane and the “Chain Gang” raise hefty amounts of cash for multiple sclerosis research – though he insists his former employer and perennial sponsor, Northwestern Mutual (John Van Der Hyde Agency), deserves much of the credit for the $400 in pledges he collected this year.
Obviously, it would take a lot more than near-blindness to make Roane miss a Virginia Dare ride. “I have so many wonderful friends,” he exclaims, as he savors his memories of the latest tour. “People are always willing to help. And what a wonderful job the MS Society does — the ride is so well-organized.
“Besides,” he laughs, “They treat us like celebrities!”
For information on the Va. Dare tour, or donating to the MS Society, visit http://www.nationalmssociety.org/var/home.
By Amelia Heymann, Capital News Service 03/24/2017 Features
MAR. 23, 12 P.M. – Hello Kitty fans, rejoice. On Saturday, the Hello Kitty Cafe Truck, described as “a mobile vehicle of cuteness,” will make its first visit to the region.
The truck will be at Short Pump Town Center, 11800 W. Broad St., from 10 a.m. until 8 p.m. The vehicle will be near the mall’s main entrance by Crate & Barrel and Pottery Barn.
The Hello Kitty Cafe Truck has been traveling nationwide since its debut at the 2014 Hello Kitty Con, a convention for fans of the iconic character produced by the Japanese company Sanrio. > Read more.
Gov. Terry McAuliffe on Thursday vetoed several bills that Republicans say would have increased school choice but McAuliffe said would have undermined public schools.
Two bills, House Bill 1400 and Senate Bill 1240, would have established the Board of Virginia Virtual School as an agency in the executive branch of state government to oversee online education in kindergarten through high school. Currently, online courses fall under the Virginia Board of Education. > Read more.
Citizen Staff Reports 03/23/2017 Education
Individuals and organizations wanting to help George F. Baker Elementary School students and staff recover from a March 19 fire at the school now have two ways to help: make a monetary donation or donate items of school supplies.
The weekend fire caused significant smoke-and-water damage to classroom supplies and student materials at the school at 6651 Willson Road in Eastern Henrico.
For tax-deductible monetary donations, the Henrico Education Foundation has created the Baker Elementary School Emergency School Supply Fund. > Read more.
Citizen Staff Reports 03/23/2017 Business
ChamberRVA is seeking nominees for the annual IMPACT Award, which honors the ways in which businesses are making an impact in the RVA Region economy and community and on their employees.
Nominees must be a for-profit, privately-held business located within ChamberRVA's regional footprint: the counties of Charles City, Chesterfield, Goochland, Hanover, Henrico, New Kent and Powhatan; the City of Richmond; and the Town of Ashland. > Read more.
Cushman & Wakefield | Thalhimer announces the sale of the former Friendly’s restaurant property located at 5220 Brook Road in Henrico County. Brook Road V, LLC purchased the 3,521-square-foot former restaurant property situated on 0.92 acres from O Ice, LLC for $775,000 as an investment. Bruce Bigger of Cushman & Wakefield | Thalhimer handled the sale negotiations on behalf of the seller. > Read more.
St. Joseph's Villa’s Flagler Housing & Homeless Services was one of three entities to earn the National Alliance to End Homelessness' Champion of Change Award. The awards were presented Nov. 17 during a ceremony at the Newseum in Washington, D.C.
NAEH annually recognizes proven programs and significant achievements in ending child and family homelessness.
Flagler completed its transition from an on-campus shelter to the community-based model of rapid rehousing in 2013, and it was one of the nation's first rapid re-housing service providers to be certified by NAEH. > Read more.
Richmond International Raceway's 13th annual Community Christmas tree lighting has been rescheduled from Dec. 6 to Monday, Dec. 12, at 6:30 p.m., due to inclement weather expected on the original date.
Entertainment Dec. 12 will be provided by the Laburnum Elementary School choir and the Henrico High School Mighty Marching Warriors band. Tree decorations crafted by students from Laburnum Elementary School and L. Douglas Wilder Middle School will be on display. Hot chocolate and cookies will be supplied by the Henrico High School football boosters. > Read more.
CAT Theatre and When There’s A Will director Ann Davis recently announced the cast for the dark comedy which will be performed May 26 through June 3.
The play centers around a family gathering commanded by the matriarch, Dolores, to address their unhappiness with Grandmother’s hold on the clan’s inheritance and her unreasonable demands on her family.
Pat Walker will play the part of Dolores Whitmore, with Graham and Florine Whitmore played by Brent Deekens and Brandy Samberg, respectively. > Read more.
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CalendarThe Latin Ballet of Virginia will present “NuYoRican” at 7:30 p.m. March 17-18 and at 3 p.m. March 18-19 at The Cultural Arts Center at Glen Allen. “NuYoRican” tells the story of the Puerto Rican people who migrated to the United States after World War II and the cultural shock they experienced because of the enormous changes that followed from Puerto Rico being declared a U.S. protectorate. The performance includes true accounts from such authors as Julia Barden Torres, Piri Thomas and Esmeralda Santiago. For tickets, visit http://www.latinballet.com. Full text